About Micah

I get a lot a questions about Micah, his health and the history of his diagnosis.  Here is just a tid bit!

I found out at 16wks preggers that there was a 1 in 26 chance that the baby would have DS.  It was devastating I won’t lie.  I had to go through the mourning process.  I think we all do.When Micah was born he was 6wks premature.  He was 4lbs9oz.  He was so tiny! 

Micah

 

Just born!

 

After his birth the dr’s told me that he had everything wrong under the sun.  He thought then that he had leukemia, Hirschsprung’s, heart problems, etc.  They said we would be “lucky” if Micah came home by his due date much less any sooner.   With the power of prayer did not have leukemia or Hirschsrung’s.  He did however have AV Canal defect.  (wholes in his heart)  The cardiologist said that he wasn’t strong enough for surgery yet and that his heart was under to much strain…yet but that surgery was needed just a later time. 

Micah had open heart surgery at 3 months old.  It was unbelievable how quickly Micah began to thrive!

1hr after open heart surgery

 

5 days after surgery!

9 days after surgery!

 

He has had 2 sets of tubes in his ears due to the fluid backing up.

Then came that horrible day that he was diagnosed with cancer.   November 6th 2007.

Micah also say a GI dr for a while.  This kid would throw up everywhere!  I mean to the point that we had to remove the carpet in the living room and hallway!  Gross!  Nothing was working!!!  He just eventually slowed down on his spitting up.

Til this day Micah will still spit up if something doesn’t agree with him.  He also gets diarrhea quit often.  That get’s old!  I have looked into Celiac disease.  I had some blood work done to see if he had any markers (because a blood test can’t really detect it for sure) but the dr’s said that it was normal.  I ALWAYS ask for a copy of the blood work and when I was looking at it the numbers didn’t appear normal to me!  I am convinced that he has something going on with his GI tract.  I will get to the bottom of it!